Day 33: Perspective

Perspective
Today was a hard day. Yesterday we had the benefit of having a very happy Ellie most of the day. This morning at 3:00 a.m. Ellie woke up hangry and inconsolable. She was angrier than we had ever seen her on the steroids. There was a lot of arm flailing and hitting and just general unhappiness. She did that for about an hour and finally we were able to find something that she was willing to eat. She ate until about 4:45 and then got angry again. At 5:00 a.m., we gave her some benadryl and tylenol to try to get her to sleep and control any possible pain. She slept until 5:45 a.m. and then woke up angry again. All of this was so hard to deal with for me. It’s not easy to watch your child in pain and it’s not easy to see them acting out…